My name is Amelia and I live in Sydney, Australia. I was diagnosed with FA in 2016 when I was 23. It was identified after I had chemotherapy for bowel cancer, and my body reacted pretty negatively to it! I haven’t been transplanted. I have a team of doctors at Chris O’Brien LifeHouse in Sydney who help me manage any issues and do my screening. I am currently a youth worker with Fusion Sydney South, helping young people realise their potential. I am excited to be part of FASA and hope to bring patient voice to our advocacy and services! I am currently also involved in FARF in America, through the FAdult Council – a group of adults who aim to empower all adults with FA as one community. Please feel free to contact me for a chat, a question or advice, via email
or through Facebook, at any time.