FAmily & Adult Meeting
The FA Family Meeting is an annual event that allows families affected by Fanconi Anaemia to connect with other families affected by FA, and attend presentations by researchers and clinical experts who are active in the research and treatment of Fanconi anaemia.
The format of each family meeting will vary depending on the venue, and availability of speakers. We tailor each family meeting to best suit the needs of the families attending.
Families are invited to share their experiences for the benefit of others to assist in preparing, planning, and coping with some of the hurdles living with FA brings.
Among our number are adults also living with FA that share the unique perspective of growing up with the disease and the challenges they have faced, and more importantly the hope gained from their personal achievements
Our Next Family Meeting is in Late October 2025
Register below to receive updates concerning the 2025 family meeting
