Run with fasa
Aunty Oona is running for Noah
and kids everywhere living with Fanconi Anaemia
Oona will be running the grueling 42km Sydney Marathon (Sunday August 30th) to raise funds and awareness for Fanconi Anaemia Support Australasia (FASA) and the SVI Fanconi Research Unit. She has been an amazing aunty and supporter throughout Noah’s journey. Oona is a passionate Occupational Therapist and takes up this challenge as an opportunity to continue supporting Noah, FASA and SVI.
About Fanconi Anaemia (FA)
FA is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
We hope to raise $500 for each kilometre in the run (42km)
Donation progress is updated periodically throughout the day.
Donations will not be reflected here immediately.
Sponsor Oona's Run
To follow and support Oona on her running journey, please donate here!
Donations over $2 are tax deductible. Bonus!
Make a donation
About Fanconi Anaemia Support Australasia (FASA)
FASA was established in 2019 (and took the place of previous local FA organisations) to bring together families living with Fanconi Anaemia. It’s a rare disease, so the chance to meet and get to know other FA families, and to share knowledge, advice and experience, is invaluable. FASA is creating that virtual community across Australia, New Zealand and the world, and offering all the support we can. FASA is also closely aligned with and a supporter of St Vincent’s Institute of Medical Research in Melbourne, the centre of Fanconi Anaemia research in Australia.