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Consumer-led Medical Research Survey
Thank you for assisting us in this medical research survey concerning a Brush biopsy study for
early detection of pre-cancerous lesions in the mouth.
Please answer the questions below.
I am a
FA patient
FA carer/family of patient
Physician / Clinician
Other interested party
Do you think it is a good idea to offer add-on screening for head and neck cancer to people with FA in Australia?
Yes
No
Not sure
Would you or your child consider participating in this add-on screening study?
Yes
No
I am already involved
Not sure
What are the major challenges for you with current surveillance?
Getting to the appointment
Engaging my medical team to do regular oral surveillance
Fear that something may be detected
Other (please specify below)
Other challenges:
Would it make you feel better or more empowered to be involved in a screening project?
Yes
No
Not Sure
Do you or your child already participate in any studies about FA?
Yes
No
Prefer not to say
What helps you decide if you do or don't participate in research studies?
Is there anything that you would like to add?
Submit
